InvisibleDisability
Bradykinesia: The Parkinson’s Symptom People Don’t Really Understand
Bradykinesia – slowness of movement – can feel like being a snail inching along beside a road where the rest of the world are blurring past obliviously. Its severity can fluctuate quite a lot throughout the day, and over time. I can move relatively “normally” one moment and be severely affected the next. Sometimes is … Read more
Blog: Who Cares? Are Carers of People With Parkinson’s Undervalued?
This week’s episode of Ordinary Life was inspired by a conversation Kitty had with a friend who told her they’d been advised by their partner with Parkinson’s that they had no right to complain because it wasn’t happening to them. Yet surely carers of Parkinson’s patients tread a tricky tightrope? Torn between sympathy and irritation, … Read more
Move It! Keeping Active With Parkinson’s Mobility Aids
Move It! | RSS.com It’s time to talk mobility aids. Why should we use them, when should we not? Are they good for us, or do they hold, us back mentally and physically? If you have Parkinson’s, how much should we rely on medical assistance instead of exercising? This episode was first broadcast on 5/5/2026 … Read more
We’re Not Your Business Opportunity
We’re Not Your Business Opportunity | RSS.com It’s one thing to sympathise over the very real fears of Parkinson’s. It’s another to use that fear to scam people with pseudo science and a hefty side order of snake oil. Kitty and Emma talk about the various methods of assistance they’ve been offered. Grab yourself a … Read more
Facing Futility
Facing Futility | RSS.com What’s the Point? It’s all a moot argument, isn’t it? Parkinson’s will get you in the end, so why push back at all? We discuss how we deal with feeling apathetic.
In Surgery We Trust
In Surgery We Trust | RSS.com We talk to Johnny Boyle of Auckland about life with Parkinson’s, and his hopes for improvement as he prepares for major brain surgery to try to reduce his symptoms. #parkinsons #deepbrainstimulation #dbs #brainsurgery
S4E2 Emma’s Auckland Adventure
Emma talks about her appointment at Auckland Hospital for Deep Brain Stimulation (DBS), an invasive yet effective treatment for the symptoms of Parkinson’s. How does she feel, and how does one cope with the prospect of such major surgery? Contains graphic descriptions of treatments. Emma’s Auckland Adventure | RSS.com